Nurse takes kids with Pfeiffer Syndrome home


Their parents are determined to give them the best possible care.

This heartwarming tale reminds us that there are kind-hearted individuals who walk among us, and Linda Trepanier is certainly one of them. A nurse from Minnesota, Linda went above and beyond in caring for two twin babies with a rare genetic condition called Pfeiffer syndrome.

With three biological children, three grandchildren, and having fostered 16 other children, this remarkable woman is truly unique. Being an adoptive parent of three as well, her experience in raising numerous kids made her confident that she was the perfect person to assist with the sweet twins’ situation.

Pfeiffer syndrome is a genetic disorder characterized by the premature fusion of certain skull bones which prevents the skull from growing normally and affects the shape of the head and face.

Babies Marshal and Matthew were diagnosed with this syndrome immediately after birth. Their breathing was also impacted by the condition.

The newborns’ parents were deemed unfit by Child Protective Services to care for them, so they were placed in foster care with Trepanier, who knew they required constant attention.

The fairy grandmother explains that despite receiving comments to retire and enjoy life instead of caring for special needs kids like Marshal and Matthew, she is dedicated to them out of love and would never consider leaving their side.

“When I first saw the twins, I thought they were the most adorable babies I’ve ever seen,” said Trepanier.

“They had big heads and tiny bodies. As soon as I saw them, I fell in love. I knew in myself that these boys were mine.”

When the boys reached three years old, Trepanier had already adopted them and they are now officially her sons. She was initially asked to adopt just one of them, but the idea of separating them was too painful for her.

Trepanier checks the boys’ temperature regularly and keeps a close eye on their breathing tubes. It’s a lot of effort, but seeing her boys smile makes it all worth it. She looks forward to the day when they can live normal, independent lives.

“I feel blessed that I can make the lives of these children better,” said Trepanier. “It’s a really hard job but seeing them happy makes me happy too.”

It’s important for everyone who spends time with the twins to ensure they are in good health, as the boys are more likely to get infections.

They have already had three surgeries on their head.

“I just fell in love with them. I knew in my heart that they were my boys,” Trepanier said. “People struggle to understand. They say, ‘Oh, those kids are going to tie you down.’”

Marshal and Matthew, despite their health issues, are joyful children who enjoy laughing and having a great time every day.

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